Yesterday we began our journey to try to uncover what was going on in Ellie's little body. We knew Ellie had VSD. When we had Ellie's file reviewed by a doctor at referral we were told with the size of her hole there was a good chance it could close on it's own or if she needed surgery it wouldn't be too invasive. We knew in China that there were reasons she was not thriving and was so tiny. After visiting the orphanage we wondered if it was because of the environment she was in? We also knew there could be something going on in her little heart that also attributed to her delays.
Today we learned that our little Ellie has a large hole in her heart. It is almost double the size that was stated in her paperwork. The hole is having a negative affect on her heart. Our little Ellie will need open heart surgery. She is not in heart failure but she will need surgery sooner than later. They would love to see her get some good nutrition and meat on her bones before they do surgery. They don't perform this surgery in Sioux Falls so we are consulting with doctors for 2nd and 3rd opinions.
We are asking that you cover our little Ellie yet again. Pray for good health for our peanut and that she can daily gain strength. Pray that her heart would remain stable in the days to come until she has surgery. Pray for us as we continue to process the news of today. Pray for wisdom as we find a team of doctors that we feel comfortable with and that God would give her doctors wisdom on the timing of surgery. We know God has our little girl in the palm of his hands and today's news is no surprise to him.
Thanks for standing in gap for us once again.
27 comments:
Praising God she is now in your loving hands!! (And that you can fatten her up a bit with french toast!!) Hugs to you sweet friend!! Let me know if you have any heart surgery questions!!
Ok, as you know from Ivy Joy's heart, Boston Children's comes highly recommended!! CHOP, I suppose, might be 2nd on the list. So thankful that you are aware of what is going on, and that you have 'caught it' prior to heart failure. Praise for that, right?! That is good! Will be praying for Ellie and her parents as you determine the best path forward for your entire family (not easy to be the mom of 5, of that I am certain!). Peace be with you!!
Thank you very much for sharing your beautiful Ellie and your family with us! Thank you very much for your big, big heart!! Thank you very much for loving Miss Ellie big, so big that words can't describe. We will definitely pray for your little Ellie to be strong and ready for her surgery. Happy Thanksgiving to you and yours! Holly Nguyen
Julie you are all In our prayers.
Ellie is going to do great! Not to make light of her condition, but VSD is one of the easiest of the surgeries. I have a son with TOF and a daughter with a small VSD that is closing on it's own. If you have to pick a hospital, I would pick one of these three Boston, Ohio, or Atlanta. They are the best! We had our surgery in Boston and our surgeon while he isn't mister friendly he does his job and expects perfection. Feed her as much as you can and we will pray she gains some weight. My son has surgery on a Friday and went home on Tuesday. They recover amazingly. Wishing you a Happy Thanksgiving!
Hi
I dont know if you follow this blog or not - but their daughter (just home from China) is under going MAJOR heart surgerys (yes plural) - They are doing amazing work for her - so you may wish to connect with this mom or the hospital/surgeon in Boston...I hope and pray you find what she needs.
Carol in FL
the link to the blog mentioned above..
http://sammonsfamily7.blogspot.com/
We'll keep you all in our prayers. There is an excellent children's hospital about 30 minutes from our house..if you end up this way we'll do what we can to help.
We will pray for precious Ellie..she is such a beautiful little girl and I am sure which ever Dr's you choose will do a wonderful job fixing her little heart right up. Congrats on being home with your whole family
Janice
so praying for your little angel!!!
Just happened to jump onto google tonight and saw your post. Know we are praying for sweet ellie and your family!!!! If you head to CHOP for that 2nd or 3rd opinion, please let me know! If there is anything I can do, you know i am a phone call or email a way.
Have a Blessed Thanksgiving Julie...... so much to be thankful for.....I am glad you have your little angel home.
xoxoxo,
Lisa
I've been following your blog since you guys traveled to China - so glad your little one is home and will be praying for you in this journey with her!
We are praying for you and your sweet angel! You all are my mind and heart often but God is great praying you feel his peace!! She is such a doll!!
Julie- I was so sorry to read this today. We are praying for little Ellie! Please know you are all in our thoughts and prayers.
Please know you are all in our prayers. Glad you know what you are dealing with and we trust that God will heal Ellie quickly.
Praying for your sweet girl! I know God will guide and direct you on this journey. He will give you all the answers you need to bring complete healing for Ellie's precious heart!!! Happy Thanksgiving!!!
There has been an amazing "heart miracle" going on the last month at Bostons Childrens Hospital for Ivy Joy. The pediatric surgeons there saved Ivy's life after surgery in Phoenix,Az. failed and she went into heart failure. The blog is googled for me at Loving life with Lexi. See if this amazing story can help you out. Good Luck..
Blessings to you all on this holiday season. mm,vancouver,wa.
Praying!
Julie, We are praying for little Ellie! I'm so sorry to find out that her VSD is worse than you thought but I'm so thankful she will have access to such great medical care in the USA. We live 45 minutes from The University of Michigan and they have great doctors...not sure what hospitals you are considering. You have a beautiful family and I will pray for strength and wisdom and peace for all of you as you deal with Ellie's health journey. She is so adorable and I can't wait to watch her blossom and grow as the months go by! Keep up the beautiful pictures. -Marie
Hi Julie,
Although we have never met I have been following your journey to your precious Ellie and am so thankful she is finally home with her family. I am also sorry to hear that her heart condition is worse than you expected but as someone else mentioned earlier - a glorious "heart miracle" just occurred in Boston with Ivy Joy so if you don't already know her Mommy, I would encourage you to reach out to her. Blessings to you and your sweet family!
I also wanted to offer up our help in any way if you find yourself down this way at Blair Batson Children's Hospital in Jackson, MS. Please contact us if you need anything - prvb2119@comcast.net. Praying for your little Ellie!
Julie,
We are praying for you and your special little Ellie. I am so greatful she is home with you and with her family being loved on and prayed for and over. We are praying for Wisdom for you as you pick a surgery team and praying for strength and healing for your little one. She is simply stunning. I am so happy she is home here where she can be treated by doctors and given an amazing future. Praying for you all! Love and hugs!
I will be praying for your precious little Ellie, for the Lord's healing, and comfort for you all.
Love,
Daleea
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